July 22, 2009

The Cruel Bureaucracy of Thomas Insel and The Interagency Autism Coordinating Committee

If ever there was metaphor that most succinctly captured the federal government 'don't give a damn attitude' toward people and families with autism, it is this.

A boy with autism, putting on a tie and flying across the country to address the HHS Interagency Autism Coordinating Committee on his struggle, and giving his carefully prepared speech to an empty conference room, because the IACC canceled the public comments and left early, with only his mother to clap for him when was finished.

Why is the destiny of our children in the hands of smart people who don't give a shit about us or our children? Does it matter how many letters they have behind their name if their values suck?! Why are we trusting our babies to people who are not concerned with our babies???!!!

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